Being sick is no fun. Being sick all the time is even less fun (that's negative numbers of fun, for all you non-math majors out there!). But that's my life, and that's been my life for four years. I have a rare disorder called Ehlers-Danlos Syndrome, type 3 hypermobility, which pretty much means that my collagen, which makes up roughly 80 percent of the body's structures, is faulty and fragile. It's not at all pleasant — have you ever sprained your ankle? Imagine that kind of pain, but spread through every part of your body. Even my ribs manage to dislocate sometimes!
![]() |
| Me (in the center with the bad dye job), a month after my diagnosis, at the 2011 Steubenville West Youth Conference |





